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March 24th, 2018, 02:38 PM
#81
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March 24th, 2018, 05:02 PM
#82
Ask me about my bottom br
I don't know what to say Dave. Hoping for the best case.
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March 25th, 2018, 01:30 PM
#83
I'm gooder.
Keep your head up Dave. Kids develop at different stages and not everyone is the same.
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March 26th, 2018, 09:06 AM
#84
High Plains Luddite
"albeit at the very mild end of the scale"
Best wishes to you and your family, Dave.
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March 27th, 2018, 08:29 AM
#85
Parts Guy
Best wishes indeed. Stiff upper lip and all that, as a parent it must be soul-crushing, but the best thing you can do for the kid is to keep a positive face and give him the best life he can possibly have. I have a nephew who's severely autistic, about 7 years old and still can't really talk, and a friend who's child was born a few years ago with cystic fibrosis. Seeing those guys stay brave and put the work in regardless is inspiring.
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March 27th, 2018, 06:24 PM
#86
Senior Member
Turns out we had the syndrome wrong - it's Cornelia de Lange syndrome that the geneticist thinks he has
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March 28th, 2018, 09:19 AM
#87
Who's 'we'?
You told us wrong or the geneticist got it wrong?
Can he confirm the diagnosis rather than just telling you what he thinks? Maybe you guys should try a 2nd opinion.
Anyway, regardless of the diagnosis, your baby is still a precious miracle of life! Kids are amazingly resilient with their development.
Doctors/geneticists predicted/diagnosed a short meaningless life for Stephan Hawking, but that shows what they know about rare genetic disorders.
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March 28th, 2018, 12:09 PM
#88
Senior Member
We = my girlfriend and me. I actually deliberately forgot it but she thought she remembered, but she remembered incorrectly and found the doctor's notes yesterday which said what was discussed.
Also, there's no actual diagnosis yet, I'm just having to deal with speculation at the moment. It won't be a matter of opinion when the tests come back in five weeks - we will know for sure then.
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March 28th, 2018, 12:18 PM
#89
Jedi
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March 28th, 2018, 03:51 PM
#90
Ask me about my bottom br
Yeah dude. What Cam said. Because Cam is awesome.
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